That wire is just to my iPhone. I'm hiding my port access in my cleavage. |
But I did it, and now it's over (thank you, mommy). Today I'm very happy the sun is shining and I only have to swallow 3 more 50 mg pukey p pills (the biggest and gaggiest ones known to patients the world around). It is FINALLY October, people!! And although it's difficult to fathom that this roller coaster of disease has been going on since May, we are now so much closer to the end of treatment then we were then. I have the scars (and the medical statements) to prove it.
Getting accessed with Priscilla (she has the kindest smile), Dr. Henry's RH lady. |
Pukeriffic. |
Eventually, we finished with a lovely cytoxan drip, I was de-accessed from my port and sent on my merry way. I'm not 100% sure, but I think I may have left the clinic with words along the line of, "no offense, but I hope I never see you again..." In retrospect, "thank you for your help" probably would've been a bit gentler or even gracious, but I just wasn't in that kind of mood. More of a let's-get-the-F-out-of-here-and-never-look-back kind of mood.
Getting the party started... |
How did they know I am a teacher? |
We gave Dr. Henry one of our Team Mama Mia buttons (thank you JJCARMS) and I'm pretty sure he mentioned something about wanting to borrow my purple wig in the future. I have more gifts planned, but I'm saving them for when I get good news from my final round of scans (not until December). I will have my next set (CAT/PET) in a few weeks, just prior to meeting with my radiation oncologist, at Abington Hospital, when we will discuss the radiation regimen to zap any remaining biatches lingering in my mediastinal cavity.
Even purple gloves??? |
So although I'm still feeling physically poopy, weak, and I am yes, still bald, I do have a lot to look forward to:
#1: My hair will start to grow back (I'm told eyebrows and eyelashes and anywhere else you don't want hair to grow will be the first to arrive) on my head in about a month. Since hair grows in cycles, not all hairs will grow at the same time. However, something is better than nothing.
#2: My energy will return in a few weeks (yes, only to be zapped during radiation - but I have a lovely chaise to help with the relaxation).
#3: There is a Township Public Affairs Committee Meeting on Wednesday night of this week. Can you guess what issue will be brought to the table??
#4: I'm searching locations for the dance party we will be hosting in a few months. I'm getting the setlist prepared, and as soon as I can think about food again, I will get to work on the hors d'oeuvres, decor, and invitations (yes, you're all invited).
#5: As soon as we meet with the radiation oncologist, we will have some sense of how many sessions with the zapper I'll need. This will allow us to plan a much needed, wicked vacation to some sunny place far away from the limitations of our house (and the marching band, in particular).
#6: At some point in the not so distant future, I will be able to stop taking a great number of pills.
#7: Going back to work!! Truthfully, I'm not always thrilled with the idea of returning to my full-time position at school. It requires a lot of energy, just to do the bare minimum (which isn't actually enough to be successful). But I miss my kids and being productive in a way that doesn't involve laying down and saving my own life. I long for the sense of normalcy and routine (as crazy and draining as it is) that having a job (outside the home) brings. Oh, also? You get to talk to other adults.
#8: Sewing pillowcases for ConKerr Cancer. It is a delightful organization that collects new pillowcases (sewn to specific measurements) and delivers them to children with cancer in local hospitals. At the end of Round 4, I picked out a whole bunch of cute fabrics for this very purpose, but have not had the strength to get started on the project. It will give me a chance to be productive, while still conserving my healing energy. Plus, you get a discount on your next purchase when you drop them off back at the fabric store! Wahoo!
#9: Which brings me to.... shopping!! Not that I have any money since I'm on sick leave, but I can browse, right, Dan?? We may not need accessories, but we will always need groceries.
#10: One word: pedicure. I am told there are various organic nail salons in center city since we moved to the burbs. I will be sure to review each and every one publicly (not that I plan on trying them all, but in case any of them want to send me freebies, I will be more than happy to post good things about them). [Sidenote: Due to risk of infection, I have not been able to indulge in salon treatments such as the much awaited pedis. While I have done my own nails for the past 4 months, in varied shades of violet, lavender and sparkly grape - thank you ladies, you know who you are - I am looking forward to a more normal immune system as well as being pampered.]
And since there aren't enough thank you's in the world, I must again put out a huge Thank You to all of you amazing folks who have been bringing us dinners for the past 4 months. It's been quite a relief to not have to worry about getting food on the table in time for everyone's hunger to kick in. You will never know how much we have appreciated all of the meals - made with love and by some darn good cooks. Although I look forward to being independent again, I'm not sure how easy it will be to start cooking again (but in our soon-to-be brand new kitchen, at least the surroundings will be pretty)!
Since this post is on the longish side already, I will not go into thanking all of the wonderful friends and family who continue to send messages and pick-me-ups from near and far. You will just have to keep your eyes peeled for the 2nd Triannual Team Mama Mia Appreciation Day, coming your way a few weeks from now.
Pre-access, of course. |
xxoo
A gift certificate to THE best organic nail salon in the city is waiting for you. Let me know when you are ready and a fabulous mani/pedi will be yours at Tierra Mia on 17th Street. You will be pampered and indulged to your hears content by Karina (sp)?, my new favorite person in the world, and her adorable fiance, Justin, though he usually just provides comic relief. I'll forward their web site info to you. When can you go? Joyce
ReplyDeleteMay the One who was a source of blessing for our ancestors, bring blessings of healing upon Mia, a healing of body and a healing of spirit. May those in whose care they are entrusted, be gifted with wisdom and skill, and those who surround them, be gifted with love and trust, openness and support in their care. And may they be healed along with all those who are in need. Blessed are You, Source of healing.
ReplyDeleteMia, you are a source of inspiration. I admire your courage and your sense of humor, you make me laugh, more importantly, you make yourself laugh even in face of such hardship. You'll make it babe! Would you like to use our house to have that DANCE PARTY you talked about? We'll be able to help out w/ food and decorations etc... love you, Rabia
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